Time to Say Goodbye


It’s time to say good-bye to A Miracle in the Works. My miracle happened. She came into this world with a bang and hasn’t stopped.

At 33 months, she is still nursing, starting to speak in sentences, walking, running, jumping. She’s catching up and probably won’t qualify for continued services once her early intervention program ends at age three in June. We’ll continue to do therapy outside of school on our own but it won’t be covered by the State, as it would be if she qualified. But, she’s doing so well, it looks like she won’t need it!

I’m so proud of my little girl. I’m proud of me. I’m proud of you.

You ladies have been a rock to me. The community online that is built across the Interwebs (from the US to South Africa to Germany to the Philippines) is an amazing one. Your words, support and courage carried me through many challenging times. I thank you.

I’m saying goodbye to this blog because I’m moving on. I clearly haven’t put time and energy into the blog in months and months. For several reasons:

  1. I haven’t had much new to say.
  2. I’ve been so focused on going to weekly therapies with Roo and then working that I’m too tired to do anything with the blog but read and click like to show my support to you.
  3. In my spare time, I’m working on my indoor play space, which I’ve secured all of the funding for and hope to open in the summer.
  4. I felt like this blog was turning into a place to vent about my marriage rather than a place to inspire (and that annoyed me). I can journal privately and not be an annoying blogger.

So, I would love for you to follow my next journey. Search for Roo’s Wo.rld of Di.scovery on Facebook. Or, look for @DiscoveryRoo on twitter.

I hope to see you there. I’ll miss you. Thank you again for everything.

Hopefully, you’ll read this message. In a week or so, I’m going to take the blog down. Sending many positive wishes to those of you who are still waiting for your babies…

I’ll leave you with this recent picture of my sweet girl.

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xoxo

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2014 in review from WordPress


The WordPress.com stats helper monkeys prepared a 2014 annual report for this blog. 2014 was not a big year in blogging for me but I appreciate those of you who stuck with it for me. I resolve to make 2015 a better year for writing. I think it helps me grow in so many ways, both personally and professionally.

Happy New Year to you all and look forward to spending 2015 with you!

xox

Here’s an excerpt:

The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 19,000 times in 2014. If it were a concert at Sydney Opera House, it would take about 7 sold-out performances for that many people to see it.

Click here to see the complete report.

tap…tap..tap…you there?


I wouldn’t blame you if there is no one left reading this blog and all I get is radio silence. I can’t believe that it has been about 4 months since I last updated. I don’t know why but I haven’t been motivated to post. So much has been happening in our world – mostly positive!

On Roo…

She’s doing great. My little doll. She’s walking and running and trying to jump. She has more words:

  • Beesh (beach) ball
  • Bool (school) bus
  • Ornsh (orange) ball
  • Baby
  • Gee (what she calls her stuffed Roo, short for Kangee) and Mama’s Gee (she found her back up one and thinks it is mine!)

She gives everything a name (e.g., Mama Beep Beep, Dada Beep Beep, Baby Beep Beep for her cars). It’s really cute.

Her imagination has taken off and is really into imaginative play. Someone gave her a tea set and she makes tea (dee) for her stuffed animal friends and us. My parents gave her a Fis.her Pri.ce doll house as an early Christmas present and she loves all of the characters and has them play together. I love watching her mind work.

She has made so much progress yet still has so far to go. The genetic test came back normal – YAY! But leaves us with questions still as to why she is delayed. She is still about 9-12 months behind. She’s gaining weight slowly but surely. At her endocrinology  appointment, she weighed in at 24 pounds (with clothes on) and is 33 inches tall. Everyone is so surprised when I tell them that she’s almost two and a half. She’s my tiny little bug.

We saw a biochemical geneticist earlier in the week and she ordered some additional tests to see if we can make some more progress in determining what is causing her delays. She warned us that we may not find anything and that it might take years to figure out why she is behind. (Not very promising)….

Roo started “school” twice a week in September. She is doing great. I drop her off and she says, “Bye Mom.” She is so happy to see me when I pick her up. I thought she would struggle but she only cries if we’ve missed a day or two and then by the next time she’s ok. We’re working to get her more engaged in playing while she’s at school but she still needs a teacher to guide her to make a choice. I seriously thought that I would be the mom whose child cried the entire time but she doesn’t! I’m so pleased

Roo's first day

Roo’s first day of school; there’s a one way mirror so I can spy on her! She took her Roo with her for company 🙂

On the Montessori school…

As for my Montessori school idea, I have a more promising idea in the works. I can’t wait to share. It is similar to a school but even better and will make a difference to even more in our community. It will be Montessori inspired and will be play based 🙂 Stand by…I’ll do a password protected post on this in the very near future to share more with you, if you’re interested.

On me…

I’m OK. I’m motivated on so many levels by my new project that I can only move forward and be excited. Marriage is not motivating at all. A part of me just feels like I’m going to stay married until my new plan is in place. I’m going through the motions. I’ve asked for marriage therapy and tried it with him unsuccessfully and asked again without any response. We lack any and all intimacy. I’m so sad. I’m so lonely. I don’t know how we can turn things around…

On us…

We are visiting my parents for Christmas in Europe. I’m really looking forward to it. I can’t wait to see them and celebrate one of my favorite holidays of the year. Roo loves my parents so much – she calls them Ma and Pa. I don’t look forward to a 14 hour plus flight but it’ll be worth it! She and I went to Florida in October and she was a great little traveler. I think she’ll do great and it’ll be easier with another set of hands to help!

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On you…

I’ve been silently reading/following and cheering all of you on from afar. I love the progress that your little one(s) have been making. If I don’t make it back online before the end of the year, I wish all of you a wonderful holiday season and Happy New Year!

Hypothyroid


At the end of last week, we got a call from Roo’s pediatric endocrinologist. The latest test results came back and her elevated TSH (Thyroid stimulating hormone) levels were even more elevated than the test from a few weeks earlier

May – 8.4
June 12.5
Normal range is 4.5

The endocrinologist wasn’t sure why those levels are high and all of her other test results came back within range. The elevated range indicates that she has hypothyroidism. It could be one piece to the puzzle of why she is developmentally delayed.

So, Roo has started to take 25 mg of Levo.thyroxine every morning before she eats breakfast. Interestingly, the medication is a pill. My first thought was how the he.ll am I supposed to get my 2-year-old who doesn’t eat anything but sweet potatoes to swallow a pill? However, genius instructions showed me how. I crush the pill between two spoons and dissolve it in some water, which I suck up into her medicine dropper. Easy peasy. Roo takes it like a champ!

Thank. goodness.

We go back in three months for another round of blood tests to check her levels and to see the endocrinologist again. Hopefully by then, we will have gotten our genetic testing approved and completed. Sigh.

Anyone else’s little have a hypothyroidism? Did the meds help?

Overwhelmed


I need to vent: I’m feeling so overwhelmed. I have so much going on with work and then I have this intense pressure to make sure Roo is going to be ok. I’m waiting for the referral to Seattle Children’s to go through so I can make an appointment for her to see a neuro developmental specialist, which has a three-four month wait. She’s most likely going to need surgery on her eyes again in the next month or two. I just want my baby to be ok and catch up. Everyone tells me that she will but then they want me to get more testing done on her and that makes me think that she won’t be ok and I’m scared.

I just want to curl up and wake up when this is all over.

It is just this week that is tough with work so I just need to get through it. It really sucks that my mom left when I feel like I need her the most. (AND, I got a call from someone who wants me to consult on the most amazing opportunity with a big NY client but I just can’t take anymore on my plate. I passed it on to a friend).

I want to just sit around and cry and feel sorry for myself but that just isn’t productive. Can someone bring me some candy cane hershey kisses? Or at least remind me to stock up on them next Christmas so I can keep them around for my next meltdown.

OK. Thanks for listening and letting me feel sorry for myself.

PS: Anti-depressants are working (!) but they don’t seem to help during times like this 😦