One of the things missing in my life is knowing any other moms of preemies in real life. I’ve looked off and on for support groups since Roo was born but nothing exists.
I love my mommy group but as I’ve said before, it is getting harder and harder for me to see their babes grow and develop normally without sadness and some jealousy. I need and want to connect with other moms of preemies who understand where I am. Where Roo is.
My therapist suggested that I start my own group. She said that I have the perfect skill set and social know how to get a group of moms together and start a group. It isn’t intended to be a support group per se but a social group of peers who understand one another.
She suggested making it a formal thing with business cards and flyers. So I’m working on a website, getting a logo created and then I will look for my fellow mommies. I’ve started to dream big too.
The Ma.rch of Di.mes does a great job of helping parents while in the hospital but they redirect once you are out of the hospital. They say to look for a support group in your area but don’t provide much direction.
I’ve also done searches online and found some resources but have gotten no response from those organizations. It’s disappointing.
I would love to eventually help connect preemie moms with other preemie moms around the country. Even if its just two moms who meet. I think there is a need that is not being met that I would like to help meet.
My background is in healthcare PR and know a lot of people in the pharmaceutical and biotech world and I think I could eventually get some financial support from pharma to help me with my idea. I would need to become a non-profit group to get funding but down the road that might be a possibility.
I’m excited by my idea and I think it’s the perfect solution to helping me get out of my funk and help me to get my identity back.
Preemie moms, do you know of any resources out there that I should be aware of? Is this something you think would be useful?